Duchenne Just Before Five

April through September 2011 was the longest and darkest time of my entire life. Talk about the lost summer. I was getting along doing the regular motions of life, at least in my mind I was but I was totally lost and desperately trying to keep myself together. I later described it as being lost out at sea without any type of life preserver and not a single ship in sight.

This spring searching for a specific picture in my vast old archives came across these pictures of Ashton and made the collage. They are from a month prior to him turning five years old. He had a long and hard recovery from a spiral femur fracture leaving him laying in a hospital bed in a spica cast, chest to toes for seven long weeks. He did not bounce back to his normal as expected and needed physical therapy to walk again. There was only so much that PT could do for him since his shortened heel cords kept his feet fixed on his toes.

Two months prior to this picture we were told my neurology that he was already at the end of ambulation, that is being able to walk and stand already at four years old, keep in mind he did neither of these well in the first place. His genetic test results which we were told would take about six weeks to get back were still pending. As it turns out they took seventeen weeks to get back. And just what do you do during nearly half a year of being told that your child mostly likely has a serious, progressive and terminal life? You simply can not go on as normal and you really can’t live like it is true until you know for sure.


  1. There has been some discrepancy in the previously published literature concerning the effect of nonselective NSAIDs on renin secretion in models of RVH levitra prix en pharmacie After the acclimatization period, the mice were then exposed to a hypercapnic normoxic gas challenge HCC, 5 CO 2, 21 O 2, 76 N 2 for 15 min after which time room air was reintroduced for 15 min

  2. Hmm it seems like your site ate my first comment (it was extremely long) so I guess I’ll just sum it up what I submitted and say, I’m thoroughly enjoying your blog. I as well am an aspiring blog blogger but I’m still new to the whole thing. Do you have any recommendations for rookie blog writers? I’d definitely appreciate it.

  3. This is very interesting, You are a very skilled blogger. I have joined your feed and look forward to seeking more of your wonderful post. Also, I have shared your site in my social networks!

  4. I was recommended this blog by my cousin. I am not sure whether this post is written by him as no one else know such detailed about my difficulty. You are wonderful! Thanks!

  5. Thanks for a marvelous posting! I quite enjoyed reading it, you’re a great author.I will make certain to bookmark your blog and will eventually come back down the road. I want to encourage you to definitely continue your great writing, have a nice day!

  6. hi!,I really like your writing so so much! percentage we keep up a correspondence more approximately your post on AOL? I need an expert in this space to solve my problem. May be that is you! Taking a look forward to see you.

  7. Awesome blog! Is your theme custom made or did you download it from somewhere? A design like yours with a few simple adjustements would really make my blog jump out. Please let me know where you got your design. With thanks

  8. Do you have a spam issue on this website; I also am a blogger, and I was curious about your situation; many of us have created some nice procedures and we are looking to swap strategies with other folks, why not shoot me an e-mail if interested.

  9. This is a very good tip especially to those new to the blogosphere. Short but very accurate information Thanks for sharing this one. A must read article!

  10. Hello there, just became aware of your blog through Google, and found that it is really informative. I’m gonna watch out for brussels. I will appreciate if you continue this in future. Lots of people will be benefited from your writing. Cheers!

  11. This design is wicked! You obviously know how to keep a reader entertained. Between your wit and your videos, I was almost moved to start my own blog (well, almost…HaHa!) Great job. I really enjoyed what you had to say, and more than that, how you presented it. Too cool!

  12. Hello! This is kind of off topic but I need some advice from an established blog. Is it tough to set up your own blog? I’m not very techincal but I can figure things out pretty fast. I’m thinking about creating my own but I’m not sure where to start. Do you have any tips or suggestions? Thanks

  13. Hello there, simply become aware of your blog thru Google, and found that it is really informative. I’m gonna watch out for brussels. I will appreciate in case you continue this in future. Lots of other people might be benefited from your writing. Cheers!

  14. I wish to show thanks to the writer for bailing me out of this circumstance. After researching through the the web and seeing ideas which were not powerful, I was thinking my life was gone. Existing without the presence of solutions to the issues you have sorted out through the guide is a crucial case, and ones which could have in a wrong way damaged my entire career if I had not noticed your web page. Your good ability and kindness in maneuvering all things was invaluable. I’m not sure what I would have done if I hadn’t come upon such a point like this. It’s possible to at this moment look ahead to my future. Thank you very much for the expert and amazing guide. I won’t be reluctant to refer the blog to any person who will need support about this issue.

  15. Link exchange is nothing else but it is only placing the other person’s website link on your page at proper place and other person will also do same in favor of you.

  16. Thanks so much for providing individuals with a very wonderful chance to read critical reviews from this site. It’s always very excellent and stuffed with a great time for me and my office friends to visit your blog not less than thrice every week to learn the newest stuff you will have. And indeed, I’m certainly satisfied with all the striking knowledge you serve. Some 3 areas on this page are in fact the most efficient I have ever had.

  17. My wife and i were absolutely joyous that John managed to finish up his inquiry through your precious recommendations he obtained from your very own web site. It’s not at all simplistic to simply possibly be offering instructions which usually people may have been trying to sell. And we also already know we have got the website owner to be grateful to because of that. The specific explanations you made, the simple website menu, the relationships you help instill – it’s most spectacular, and it’s really assisting our son and the family feel that the subject matter is awesome, which is tremendously indispensable. Thanks for the whole thing!

  18. I抦 impressed, I must say. Actually hardly ever do I encounter a blog that抯 each educative and entertaining, and let me tell you, you could have hit the nail on the head. Your concept is excellent; the problem is something that not enough individuals are speaking intelligently about. I am very happy that I stumbled across this in my search for something regarding this.

  19. I enjoy you because of every one of your effort on this site. Debby really likes making time for internet research and it’s simple to grasp why. Most people notice all concerning the compelling tactic you produce very useful tactics on this web site and as well as improve response from website visitors on the topic then our own child is now being taught so much. Take pleasure in the remaining portion of the year. You are always carrying out a remarkable job.

  20. I not to mention my guys ended up analyzing the good pointers from your web site while then I got an awful suspicion I never expressed respect to the web site owner for those secrets. The boys had been consequently warmed to read them and already have seriously been having fun with them. Thank you for simply being very helpful as well as for picking out variety of high-quality guides most people are really wanting to understand about. My personal honest apologies for not expressing gratitude to you sooner.

  21. I wish to express my passion for your kindness in support of folks who must have assistance with this important issue. Your personal dedication to getting the solution all over has been really informative and has constantly permitted women like me to get to their desired goals. Your own informative report implies much a person like me and additionally to my office colleagues. Thanks a ton; from everyone of us.

  22. Hey there! I know this is kinda off topic however I’d figured I’d ask. Would you be interested in exchanging links or maybe guest writing a blog article or vice-versa? My website goes over a lot of the same subjects as yours and I feel we could greatly benefit from each other. If you happen to be interested feel free to send me an e-mail. I look forward to hearing from you! Terrific blog by the way!

  23. I and my pals came digesting the excellent key points located on your web blog then at once came up with a terrible suspicion I never expressed respect to the web blog owner for those secrets. My guys appeared to be for this reason very interested to study them and have in effect without a doubt been tapping into these things. We appreciate you really being indeed accommodating as well as for finding variety of ideal subject areas most people are really desperate to know about. My honest apologies for not saying thanks to you earlier.

  24. I truly wanted to make a quick message to be able to appreciate you for those remarkable information you are sharing on this site. My time intensive internet look up has at the end been recognized with reputable insight to talk about with my good friends. I ‘d declare that most of us website visitors are definitely blessed to be in a notable website with many marvellous professionals with beneficial suggestions. I feel really happy to have come across your entire website page and look forward to many more exciting minutes reading here. Thanks a lot again for everything.

  25. I am glad for commenting to make you understand of the remarkable experience my wife’s child encountered reading through your site. She noticed plenty of things, including what it is like to have an excellent teaching spirit to have other folks very easily understand certain advanced matters. You undoubtedly did more than my desires. Thank you for imparting those helpful, trusted, explanatory and in addition unique tips on that topic to Julie.

  26. Do you have a spam issue on this site; I also am a blogger, and I was curious about your situation; many of us have created some nice methods and we are looking to trade strategies with other folks, why not shoot me an e-mail if interested.

  27. An impressive share! I have just forwarded this onto a colleague who had been doing a little research on this. And he in fact bought me lunch because I discovered it for him… lol. So let me reword this…. Thank YOU for the meal!! But yeah, thanx for spending time to discuss this issue here on your web page.

  28. After research a couple of of the weblog posts in your website now, and I truly like your manner of blogging. I bookmarked it to my bookmark web site record and will likely be checking back soon. Pls take a look at my web page as nicely and let me know what you think.

  29. Appreciating the commitment you put into your website and in depth information you provide. It’s good to come across a blog every once in a while that isn’t the same outdated rehashed material. Fantastic read! I’ve saved your site and I’m including your RSS feeds to my Google account.

  30. Fine way of describing, and good piece of writing to get information concerning my presentation subject, which i am going to deliver in institution of higher education.

  31. Simply wish to say your article is as amazing. The clearness in your post is simply cool and i can assume you are an expert on this subject. Well with your permission allow me to grab your RSS feed to keep up to date with forthcoming post. Thanks a million and please continue the gratifying work.

Comments are closed.